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If You're a Caregiver

Most families do not abuse, neglect, or exploit older loved ones, nor do paid caregivers. If you are having a difficult time, there are resources to help.

Links: Family Resources Online

Elders and Families

  • A Fact Sheet on Caregiver Stress and Elder Abuse
    An eye-opening discussion that all caregivers should listen to. Published by the National Center on Elder Abuse.

  • Aging/Parents and Children Together (A/PACT)
    Fact sheets packed with information from various national advocacy groups, published by the Federal Trade Commission. Topics: "Consumer fraud against the elderly," "Daily money management programs," "Making the home senior-friendly," "Alternative living arrangements," "Long-term care insurance," "Alternatives to guardianship," "The three Medi's: Medicare, Medigap, and Medicaid," "Selecting a geriatric case manager," "Caring for the caregiver," and "Community-based services."

  • Caregiver Stress and Elder Abuse
    A thoughtful discussion of family care stresses and coping strategies, explores the relationship between caregiver stress and physical elder abuse, as well as the resources available to caregivers and professionals. Published by the National Center on Elder Abuse.

  • Elder Abuse and Neglect: In Search of Solutions
    A brochure published by the American Psychological Association, useful to anyone who wants to know more about elder abuse. Includes information about types of abuse and neglect, what causes it, and where to go for help.

  • Financial Safety Planning for Older Women 2000
    Valuable and reassuring information for any woman 50 and older who has been hurt or controlled by a family member or someone they love. Modeled after a similar booklet from The Wisconsin Coalition Against Domestic Violence and the Elder Law Center of the Coalition of Wisconsin Aging Groups, some information is Iowa-specific. Published by the Iowa Coalition Against Domestic Violence, Iowa Commission on the Status of Women, and Iowa Department of Elder Affairs.

  • Preventing Stress from Becoming Harmful: A Guide for Caregivers
    If you are feeling overwhelmed by the challenges of caregiving, this is a "must read" for you. Published by the National Center on Elder Abuse.

  • Recognizing Elder Abuse Can Be Tricky
    Compelling report from NBC 6 WTVJ broadcast news South Florida.

  • Standards for Guardians
    The National Guardianship Association (NGA) Standards for Guardians, including: Conflict of Interest; Decision Making; Personal Needs; Personal Contact and Ongoing Responsibilities; Medical Services and Medical Treatment; and Management of the Estate and the Ward. Each standard is explained in detail and provides guidance to guardians in the private and public sectors.

Caregiver Supports

  • Alzheimer's Association
    Contact the Alzheimer's Association 24-hour, toll-free telephone line to link with local chapters and community resources. For family caregiver tips, go to these links:

  • Alzheimer's Disease Education and Referral Center (ADEAR)
    1-800-438-4380 (English, Spanish). The ADEAR Center, a service of the National Institute on Aging, distributes information about Alzheimer's disease (AD) to health professionals, patients and their families, and the public.

  • Caregiver Resources on the AoA Web Site
    This government site is the US Administration on Aging's Caregiver Web portal, with links to organizations, information, and resources about family caregiving.

  • Family Caregiver Alliance (FCA)
    Links to FCA online support groups and tools for caregiving: The Caregiver Online Group for families, partners and other caregivers of adults with Alzheimer's, Parkinson's, stroke, brain injury, and other disorders; The Huntington's Disease and Movement Disorders Online Support Group; The LGBT Caring Community Online Support Group for lesbian, gay, bisexual and transgender caregivers; and Link2Care for clients of California's Caregiver Resource Centers.

  • Foundation Aiding the Elderly (F.A.T.E.)
    A California non-profit organization which seeks to serve as a voice for patients and to bring about national reforms and enforcement of the laws governing the nursing home industry and its regulatory agencies in order to assure proper care, civil rights and meaningful, dignified life for the elderly in long-term care facilities. Among F.A.T.E.'s current goals are: to report abuse and neglect violations to the appropriate authorities and to provide a forum to support legal action on behalf of patients and their families.

  • National Association of Professional Geriatric Care Managers
    A geriatric care manager is a professional who specializes in assisting older people and their families in meeting their long-term care arrangements. GCM's have training in gerontology, social work, nursing, or counseling. This site has a large nationwide searchable directory for finding a care manager. See also links to care management and family caregiver resources.

  • National Family Caregivers Association (NFCA)
    The NFCA exists to support family caregivers and to speak out publicly for caregivers' needs. The site contains caregiving tips, news and information, and resources for families.

  • National Organization For Empowering Caregivers (NOFEC)
    NOFEC is a non-profit New York-based organization whose stated mission is to provide assistance, education, support, and referrals for informal family caregivers, as well to promote public awareness about the realities of caregiving. Links to support groups, seminars, counseling, and respite care resources.

Resources for Professionals

  • Developing Training Programs on Elder Abuse Prevention for In-Home Helpers
    This is a resource specifically for trainers. Persons who are not familiar with personal assistance services will gain a better understanding of the in-home helper workforce, situations that workers are likely to encounter, and factors that may influence workers' receptivity to or comprehension of training content.

  • Model Code of Ethics for Guardians
    This comprehensive publication reviews ethical issues dealing with: relationship between the guardian and the ward; custody of the person; management of the estate; termination and limitation of guardianship; and more.

  • National Family Caregiver Support Program
    The Older Americans Act Amendments of 2000 established the National Family Caregiver Support Program (NFCSP) to assist the aging network to develop caregiver support programs. This site contains links to varied caregiver publications, research, resources, and tools.

  • Preventing Elder Abuse by Family Caregivers
    A tool aimed at improving coordination and collaboration between elder abuse prevention and family caregiver networks. Published by the National Center on Elder Abuse.

  • Preventing Elder Abuse by In-Home Helpers
    This manual explains approaches and techniques for reducing abuse by helpers. Highlights best practices, models, and resources. Published by the National Center on Elder Abuse.

Last Updated: September 28, 2006  Top


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